To begin with, Sonia’s unveiling will be on Sunday, May 25th at 10:30 am. Following the short ceremony, we will meet for lunch at Ben’s Deli in Woodbury, a kosher restaurant near the cemetery. Click here for more details.
Sonia’s birthday is today, April 24th. She would have been one. Below is Jason’s first post after her birth, one year ago.
Sonia Chaya Rubin was born just before midnight on April 24th. Shannon was a trooper as usual. The epidural really helped to preserve her strength for when she really needed it. I could not believe how quick she pushed that kid out. We were watching the Daily Show when she suddenly told me that she really felt like she needed to start pushing. I grabbed the nurse, who grabbed the doctor. He went to do his normal check and surprisingly told us that the head was right there ready to come out.
No one had to tell Shannon to push, she kept asking if she could continue to push, with or without a contraction. I doubt there were more than ten pushes before Sonia popped out and let out a beautiful cry. Unlike Faye, who needed some stimulation to get her moving around and talking Sonia was anxious to interact with her new world.
With all that we’ve gone through with the baby, I think we both were hesitant to see what she looked like. All our fears were removed once we saw this beautiful girl. She was plump and healthy, like her sister (despite the underestimation of weight by the ultrasound techs) and as cute as could be. She looks just like her sister (although a little less chubby in the cheeks), but has a bit more hair than Faye did and it is a little bit darker too.
This really has been some year. My life will never be the same, and I am so thankful for that. I am honored to have been Sonia’s mom, and I am so thankful for every minute of her 4 1/2 months on this earth. She was such a blessing to us, and the few months of cuddles I got from her made everything else seem to fade away. When she was diagnosed during my 5th month of pregnancy, the doctors were not sure she would survive her first days, let alone months. I will never forget the doctor who suggested terminating the pregnancy because Sonia wouldn’t be a healthy baby. He wanted us to understand her chances of survival and how it would affect our family to live with a sick child. I only wish he could understand how deeply Sonia’s life touched our family and so many of you in her short life. It was a beautiful life and I am so thankful for every moment of it.
I am also so deeply thankful for the way Sonia’s life touched so many of you. As the mother of a sick baby, I didn’t get to parade around and show off my beautiful bundle to the world, something I still miss so deeply today. But knowing that so many of you were following along with Sonia through this page has brought me so much joy. I looked forward to checking in throughout the days of her life – especially the harder ones – to read your comments and feel your love and support.
A part of me has put aside my memories over the past 7.5 months in order to survive Sonia’s death. But now, on her birthday, I want to take the time to really remember my sweet girl. She had the sweetest eyes and smile. When she was on ECMO (life support) in her first weeks, we joked that she was one of the few who could pull off cute in that situation. And even when the doctors packed weight and calories onto her tiny body, she held her own in the cute department and made all of her care takers smile.
My fondest memories are toward the end of her life when she was doing so well. I would call to check in only to find she was out with Dr. Pettie on rounds or hanging out with the nurses. On one occasion I walked into her room to find an empty bed. When I went to find the nurse, a few of them were smiling at me and asking how I could walk right past Sonia in their arms at the nurse’s station. I also fondly remember coming in when she was tiny to find her hair in different “styles”. The night nurses would bathe her and spike or play with her hair so that it looked different in the mornings. One nurse even stuck a bow to her head and the heads of the other babies in her pod on a particularly rough day. I remember the 3 times we took Sonia outside, and how she fell asleep on 2 of those trips. The first time was such an event, and I was so thankful for my friend Erin who went out with us. By that time, I knew so many families and everyone was excited for her to finally feel the sunshine and breathe the fresh air. It is amazing how the families pulled for each other’s babies and really took care of one another.
Today, I want to remember the beauty that was my Sonia, apart from her illnesses. The weight of her in my arms was one of the best feelings in the world. And though it was only for a short part of her life, I know how much of a blessing those times were. Too many mommies never get that chance. I am thankful for all of you who were able to visit her in person. That means so much to me. I am also thankful for all of the families and babies we got to know during Sonia’s life. My life was turned upside down and inside out during Sonia’s life, but it was enriched beyond words in those short months. I am thankful for every part of it, and for the chance to love on and comfort my sweet baby Sonia. I pray for happy memories today (once I get to sleep and awake again) and for my joy for Sonia’s life to shine through my sadness. Thank you again for all of your love and prayers and support. I am so thankful for each and every one of you.
QUICK REQUEST: I am going to be putting together a scrapbook of my Sonia’s photos and photos of friends, family, and doctors and nurses who were a part of her life. If you were a part of our journey up there either as a visitor or fellow heart family or hospital staff, please photos of you and any memories you want to share. I want to try to remember as much of her life and the people who were a part of it in this book. Thanks in advance!
Lots of love,
Shannon